I hope that each one of you had a wonderful 4th of July. Our family had a great day! We went to a park down by my parent's home in Lacey, the kids had fun playing on the toy, except for the few times that we had some rain showers. Luke had a great day also, he had fun being at the park with all the family and even had a chance to play some kid baseball, with some plastic bats and balls. I helped him hit the ball and then ran him around the bases to get a home run, he really seemed to know that people were cheering him and the smile on his face was priceless, I wish we would of had the camera ready to take a picture. We did get some good pictures that I will get up soon. Then we went to my sister Jill and her husband John's home for more BBQ and lots of fireworks, thanks to their wonderful neighbors and our good friends the Hohn family.
I've had a few people ask me how Luke's appointments went? Well kind of what I expected, though difficult never the less. The Orthopedic Dr. took x-rays and after examining Luke basically told me that there is nothing we can do for Luke's knee's until he can get big enough to get a Baclafen pump. Surgery would not be a good thing right now, though possibly would be in the future, though once he would have that surgery his legs would no longer be able to go straight and he would never be able to walk again, which according to the Dr. wouldn't be a problem since there is no hope of him walking anyway. I had to remind myself repeatedly that day that I don't put my hope in Dr.'s but in God. His rehab Dr. wants to try some botox in Luke's wrists and arms to see if we can get his hands to straighten out so that he would have better use of them. I'm praying about this option right now.
God is so good to encourage me with this excerpt from Streams in the Desert:
My words. . . will come true at their proper time. (Luke 1:20)
What the Lord has said. . . will be accomplished (Luke 1:45)
The Lord is sure to accomplish those things
A loving heart has waited long to see;
Those words will be fulfilled to which she clings,
Because her God has promised faithfully;
And, knowing Him, she ne'er can doubt His Word;
He speaks and it is done. The mighty Lord!
The Lord is sure to accomplish those things,
O burdened heart, rest ever in His care;
In quietness beneath His shadowing wings
Await the answer to your longing prayer.
When you have "cast your cares," the heart then sings,
The Lord is sure to accomplish those things.
The Lord is sure to accomplish those things,
O tired heart, believe and wait and pray;
Peacefully, the evening chime still rings,
Though cloud and rain and storm have filled the day.
Faith pierces through the mist of doubt that bars
The coming night sometimes, and finds the stars.
The Lord is sure to accomplish those things,
O trusting heart, the Lord to you has told;
Let Faith and Hope arise, and lift their wings,
To soar toward the sunrise clouds of gold;
The doorways of the rosy dawn swing wide,
Revealing joys the darkness of night did hide.
Bessie Porter
Matthew Henry said, "We can depend on God to fulfill His promise, even when all the roads leading to it are closed. 'For no matter how many promises God has made, they are "Yes" in Christ. And so through him the "Amen" [So be it] is spoken by us to the glory of God' [2Cor. 1:20]."
I thank the Lord for his wonderful way of reminding me that He will accomplish those promises that he has told me. I can not lose hope or stop trusting in Him to complete the work he has began, though some days it would be easy to stop believing I know I can't therefore I have to hold on tight to the loving hand of my Precious Heavenly Father and know that He really does know best and is in complete control of all the timing in the universe, which includes the day of Luke's complete healing.
Love in Christ,
Luke's Mommy Sue
Friday, July 04, 2008
Wednesday, July 02, 2008
Luke has some big appointments today
Just wanted to ask you for prayer for Luke and myself today. He has two appointments today, one with an Pediatric Orthopedic Dr. and the other appointment with his rehab Dr. I'm praying that they will be able to offer some solutions on ways that we can get Luke to bend his knee's better and help get his muscles to relax more. Please be praying that I will have an open mind to what the Dr.'s suggest and that God will give me His wisdom in knowing how to respond.
Luke has had a great few weeks! He has been in the chamber at least 13 times over the past two weeks and we have two more dives to go next week before we take a much needed break. The biggest improvement I've seen in him has been the fact that he is smiling a whole lot more, he also seems to be communicating more. I had a talk with his OT yesterday on working on ways to help him communicate his needs more clearly with us, helping him to be an active participant of the family instead of just a bystander all the time. Luke is doing great at hitting a switch, which is a button when he wants to make a toy go, so we are hoping that he will be interested in hitting that button to talk to us.
One bit of sad news, I found out last week that Brett Jr. died. I don't know any of the details except for the fact that it happened on June 4th. If you go to http://web.mac.com/brettjr/iWeb/Pray%20for%20Brett%20Jr/Welcome.html you can see their post about his death. To say it hit me hard would be an understatement, trusting Jesus is so hard sometimes, but I can not doubt that He is in control and knows what's best for all His precious children. Please keep his family in your prayers as I'm sure they are grieving right now. I'm adding another prayer link for Hadley Fox, she is in need of our prayers right now, please be sure to check out her page at http://www.caringbridge.org/ca/hadleyfox/. Last but not least I would like to ask for prayer for a boy named Luke who had a near drowning accident last week, he is doing pretty good right now, if you want to read more about how he is doing you can go to Team Bettendorf, their link is to the side of this page.
Thank you for your prayers,
Luke's Mommy Suzi
Luke has had a great few weeks! He has been in the chamber at least 13 times over the past two weeks and we have two more dives to go next week before we take a much needed break. The biggest improvement I've seen in him has been the fact that he is smiling a whole lot more, he also seems to be communicating more. I had a talk with his OT yesterday on working on ways to help him communicate his needs more clearly with us, helping him to be an active participant of the family instead of just a bystander all the time. Luke is doing great at hitting a switch, which is a button when he wants to make a toy go, so we are hoping that he will be interested in hitting that button to talk to us.
One bit of sad news, I found out last week that Brett Jr. died. I don't know any of the details except for the fact that it happened on June 4th. If you go to http://web.mac.com/brettjr/iWeb/Pray%20for%20Brett%20Jr/Welcome.html you can see their post about his death. To say it hit me hard would be an understatement, trusting Jesus is so hard sometimes, but I can not doubt that He is in control and knows what's best for all His precious children. Please keep his family in your prayers as I'm sure they are grieving right now. I'm adding another prayer link for Hadley Fox, she is in need of our prayers right now, please be sure to check out her page at http://www.caringbridge.org/ca/hadleyfox/. Last but not least I would like to ask for prayer for a boy named Luke who had a near drowning accident last week, he is doing pretty good right now, if you want to read more about how he is doing you can go to Team Bettendorf, their link is to the side of this page.
Thank you for your prayers,
Luke's Mommy Suzi
Tuesday, June 24, 2008
Lukie loves to go camping!
Last week we went camping and we were blessed with beautiful weather, thank you Jesus! Every time I would tell Luke we were going camping he would get a huge smile on his face. It was challenging at times getting everything into place to go as I was still recovering my strength from that horrible flu bug that hit me the week before. Once again I have to say a huge "THANK YOU" to my girls Amy and Natalie who pulled most of it together.
Our good friends Yoli and her children Spencer, Bonnie and Karlos went with us. Gordy stayed home until Friday evening since he had to work all week. We went up to the top of Mt. St. Helens one day, it's so amazing to see all the history of it's volcano eruption back in 1980, there at the top of the mountain. Yoli and her children had never been up there before so they were amazed at the magnitude of the eruption, I have to say if you ever have the opportunity to go up there I would highly recommend it. One other day we went to Portland, OR to go to there Science museum, the kids not only had fun but they also learned a lot while we were there.
Yoli and I went to a Homeschool Conference on Friday and spent the night in Portland, one day I will have to tell you about our MAX adventure on their subway system. It was so wonderful to have a full night sleep as I had been sleeping with Luke all week and had not had a lot of sleep the entire week. The conference was so good, it's wonderful to go there and be reminded of "WHY" I homeschool my children, sometimes it's pretty overwhelming to think that I still have 15 years of homeschooling left.
This week is full of lots of Hyperbaric dives. I hope to get in at least 8 dives this week. Next week Luke has a few big appointments, one with the Orthopedic Dr. and one with his rehab Dr. I hope all the dives help to loosen him up so that his knees will bend better. Please be praying that God will direct the Dr.'s as they look at Luke's muscle tone issues.
This morning on the way to the Hyperbaric chamber Ezekiel reminded me that we can't heal Luke only God can. I told him that I know this is true but we are just helping to keep Luke healthy until God chooses to finish his healing work. Ezekiel then reminded me of the dream he had where God told him that He was going to heal Luke and use him one day for His work. Ezekiel has remained strong in his belief that God is going to heal Luke and often prays to God before going to bed reminding God that he told him He would heal Luke and prays it will be soon. Oh, for the faith of a 7 year old.
Love in Christ,
Luke's Mommy Suzi
Our good friends Yoli and her children Spencer, Bonnie and Karlos went with us. Gordy stayed home until Friday evening since he had to work all week. We went up to the top of Mt. St. Helens one day, it's so amazing to see all the history of it's volcano eruption back in 1980, there at the top of the mountain. Yoli and her children had never been up there before so they were amazed at the magnitude of the eruption, I have to say if you ever have the opportunity to go up there I would highly recommend it. One other day we went to Portland, OR to go to there Science museum, the kids not only had fun but they also learned a lot while we were there.
Yoli and I went to a Homeschool Conference on Friday and spent the night in Portland, one day I will have to tell you about our MAX adventure on their subway system. It was so wonderful to have a full night sleep as I had been sleeping with Luke all week and had not had a lot of sleep the entire week. The conference was so good, it's wonderful to go there and be reminded of "WHY" I homeschool my children, sometimes it's pretty overwhelming to think that I still have 15 years of homeschooling left.
This week is full of lots of Hyperbaric dives. I hope to get in at least 8 dives this week. Next week Luke has a few big appointments, one with the Orthopedic Dr. and one with his rehab Dr. I hope all the dives help to loosen him up so that his knees will bend better. Please be praying that God will direct the Dr.'s as they look at Luke's muscle tone issues.
This morning on the way to the Hyperbaric chamber Ezekiel reminded me that we can't heal Luke only God can. I told him that I know this is true but we are just helping to keep Luke healthy until God chooses to finish his healing work. Ezekiel then reminded me of the dream he had where God told him that He was going to heal Luke and use him one day for His work. Ezekiel has remained strong in his belief that God is going to heal Luke and often prays to God before going to bed reminding God that he told him He would heal Luke and prays it will be soon. Oh, for the faith of a 7 year old.
Love in Christ,
Luke's Mommy Suzi
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